‘The story is hair raising’

Hole Ousia

The BMJ of the 12th October 2018 had on its cover: “MESH: how it became a four letter word”. The journal is worth reading for a series of articles that carefully consider the polypropylene Mesh scandal. The BMJ is now calling for Sunshine legislation. I have been campaigning for this for many years.

In Scotland I have supported the Mesh survivors and have shared my considerations with the existing bodies, authorities and establishments involved in medical governance, education, and regulation. For convenience, I share my considerations in date order below:

Dr Peter J Gordon - Submission on PE1517 Polypropylene Mesh Medical Devices To seek balance in appreciation where expertise rests 

Robust clinical governance must surround treatment 

Mesh implants and fully informed consent 

Conflicts of interest and polypropylene Mesh implants 

Credible or incredible - experience is evidence 

'We were duped, we were used' 

Fully informed…

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A prescribed medication: my experience

Hole Ousia

Today, the Sunday Herald carried this front-page headline:

I was part of this Herald report. I ask you to forgive me for using a swear word. Please do not say that I am brave. I am not. I am a worrier and hate causing upset. Brave are those like Alyne Duthie.

In the era of Evidenced Based Medicine the work and thoughts of the sociologist Patrick Geddes seem to have been rarely considered. Geddes argued that evidence comes in many forms. Evidenced Based Medicine is just one form. Geddes, were he still alive, might ask how “informed” today’s evidence is?

This is some of my story of antidepressant withdrawal:

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Sunshine legislation

Hole Ousia

I have just sent this letter:

Sent: 07 October 2018 10:49
Subject: Sunshine legislation

Bridge of Allan,
7th October 2018

Dear Royal Colleges, General Medical Council, UK Governments, UK Parliaments/Assemblies, Chief Medical Officer for Scotland, Chief Medical Officer for England, MHRA, NICE, SIGN, Science Media Centre, the APPG on prescribed drug dependence and withdrawal, the Association of the British Pharmaceutical Industry, and the British Association for Psychopharmacology,

There seems to be an increasing understanding that without the introduction of sunshine legislation the potential for iatrogenic harm will continue in the UK. I have been involved in this subject for many years and have previously petitioned the Scottish Parliament to consider the introduction of a Sunshine Act. As a consequence of this petition the Scottish Public were consulted and this confirmed public support for such legislation.

I wish to share with you a recent summary that I have made which may…

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What’s this, why dis (ability)?

face the music

This post is based on a tweet I wrote this week:

I was describing interactive music sessions, singing songs, and engaging with people who have a learning disability.  The last word in that sentence seemed to be noted as the key word. I suppose we all tend to categorise things we hear. Still, it stood out to me, and got me thinking how people may see the work I do in this area.

The thing is, I’d never thought of it like that before. In music therapy sessions, we know each other by our first names, we make music together, we interact in particular…

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Another disappointing response from the Scottish Government

Hole Ousia

I recently shared my concerns about this Lundbeck sponsored meeting:

I have also documented why I do not share the view of the Chief Executive Officer of Royal College of Psychiatrists that college procedures around declarations of competing financial interest are “sufficiently robust”:

I therefore wrote to the Scottish Government and the Royal College of Psychiatrists in Scotland seeking reassurance about my concerns. This is the reply that I have received from the Scottish Government:

In the two years that have lapsed since the public consultation the “updates”, only ever issued at my request, have failed to outline any meaningful action by the Scottish Government. I remain unconvinced that the Scottish Government has any intention of acting to improve transparency in the declarations of competing financial interests in healthcare workers, researchers and academics.

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‘What steps can be taken to ensure that patient voices are listened to and heard’

Hole Ousia

On the 21st August 2018 the Scottish Parliament published this report on petition PE1517 Polypropylene Mesh Medical Devices.

This statement was made by the authors (page 35)

I share this concern of the Scottish Parliament and I wrote a letter about my concern to the Herald  at the beginning of the year. The letter was not published so I have included it below:

21 January 2018.

Dear Sir,
I have now witnessed the Scottish Government’s Department of Health seeming to disbelieve the evidence presented in three separate health-related petitions and the experience of those who have petitioned. These included the petition by the Mesh survivors (PE1717); my petition for a Sunshine Act for Scotland (PE1493); and now Marion Brown’s petition on Prescribed Drug Dependence and Withdrawal (PE1651). The latest evidence session to the Scottish Parliament’s Petitions Committee once again would seem to demonstrate…

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